The experts carrying out the study of genetics and autism spectrum disorder have been interrupted after the condemnation that the analysis has failed to adequately the autism community about the aims of the study. The main concerns related to the analysis are that the data accumulated by the experts can be likely be misapplied by the other researchers who are looking forward to treating or root out ASD-related diseases.
The director of the (ARC) Autism Research Centre, Simon Baron-Cohen led a study named ‘Spectrum 10K’at the University of Cambridge. Noatbly, in order to nurture this project, provided a fund of about £3-million (US$4-million) by the largest genetic analysis of ASD in the entire United Kingdom which is the London- based biomedical funding charity Wellcome.
This charity mainly goals to collect the DNA sample altogether along with all the information prior to one’s physical and mental health, with the motto of examining about 10,000 ASD individual and their families too.
The data and other information collected are utilized in the analysis of the genetic and other environmental donations to autism and the other overlapping states like gut-health and epilepsy-related problems. The expert, Baron-Cohen claims that it is extremely important to know the co-occurring conditions which are very frequent in people with autism and this can definitely plant new cures and other related management of this very distressing problem.
Looking back, then this study was launched on 24 August, and soon the people with autism and a few of the experts who deal with this problem have expressed their concerns about moving forward without having prior knowledge of consulting the autism community.
A group named ‘Boycott Spectrum 10K’ is led by a few people suffering from autism, have noted their fears of sharing the genetics-related information, and also have clarified that there can be a putative failure to adequately detail the benefits of the analysis.
In October, this team has decided to protest outside Cambridge’s ARC premises and they have also drafted a petition against this study full with about 5000 signatures.
A researcher, Damian Milton who performs the analysis in the intellectual and developmental disabilities at the Canterbury’s University of Kent, has also approved the petition and is in support of this protest. Notably, Damian Milton is suffered from Asperger’s syndrome, a kind of ASD. The experts simply claim that it is not clear how this analysis would work for the betterment of the participants and also the main motto of this analysis seems to be only DNA collection and data sharing.
Earlier, the launch of the Spectrum 10K, a few of the autistic individuals were extremely uneasy to share the information on their part, with the aspects of the analysis of Baron-Cohen.
Additionally, they developed and promote the controversy of the ‘extreme male brain’ theory of ASD, which relies on the idea that males are far better than females in terms of ‘systematizing,’ i.e., identifying patterns, and following the rules. On the other hand, females are just perfect at identifying, as per the behavior noticed amongst autistic people.